Amyloidosis is a disease that is very often misdiagnosed. Muriel Finkel was the caregiver for her uncle while he was suffering from amyloidosis. There was no support group available other than Muriel's own family and friends, and doctors who had familiarity with amyloidosis were hard to find. After her uncle passed away, Muriel founded an organization called Amyloidosis Support Groups to try and assist other victims of this awful disease and to give support and assistance to their families..
For more information about amyloidosis go to the Amyloidosis Support Groups website at: http://www.amyloidosissupport.com/
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Health & WellnessAmyloidosis - A Rare Disease Posted by Sandy Tankoos on August 31, 2010 - 11:51pm Tags: Rare diseases, rare disease, Muriel Finkel, Amyloidosis | ||
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3 Comments
September 13, 2010 - 12:08am
Roberta
I have a neighbor who died of amyloidosis. I've been under the impression that it is always fatal. Is that not correct? I hope I'm wrong.
September 5, 2010 - 7:31am
Gloria Lustig
I never heard of this disease until I started reading about it on this website. I guess that's why it's a rare disease. I'm going to ask my doctor about it the next time I see him.
September 4, 2010 - 2:45pm
Pat C
I found this interview very interesting. I am amazed to learn about all of the rare
diseases that exist in the USA. I can only imagine what is out there in the world.
I looked up the website and found it very interesting also.
Pat C
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