Amyloidosis - A Rare Disease

Posted by Sandy Tankoos on September 1, 2010 - 12:51am

Tags: Rare diseases, rare disease, Muriel Finkel, Amyloidosis

Amyloidosis is a disease that is very often misdiagnosed.  Muriel Finkel was the caregiver for her uncle while he was suffering from amyloidosis.  There was no support group available other than Muriel's own family and friends, and doctors who had familiarity with amyloidosis were hard to find.  After her uncle passed away, Muriel founded an organization called Amyloidosis Support Groups to try and assist other victims of this awful disease and to give support and assistance to their families..
 

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